December 2015

I’m a California native mother of twins writing about infertility, prematurity, syndromes, hearing loss, special care, life, and all the love in between.

I began this mlog with the intention of being open, honest, and insightful. Many people have questions and curiosities about our life, and I plan to be very candid.  When my twins were born more than 2 months early I fell into a deep pit of postpartum depression. I would scour the internet for hours looking for information, prognoses, but most of all hope.

More than a year later, I have reached a clearer vantage point; some days I even believe everything will be OK. Hopefully my words will strike a cord with someone out there, or simply keep you up to date on my world with A & A.

I haven’t decided whether or not to use my children’s real names so for now know them collectively as “A & A” or my daughter’s nickname “Baby Squirrel.”

When it comes to the “special care” part of all this, here is an extensive list of my daughter’s conditions (as of 12/15/2015):

• CHARGE Syndrome
• Dandy-Walker Syndrome variant
• Chronic Lung Disease
• G-Tube / persistent feeding problems from birth
• Hydrocephalus
• Bilateral sensorineural hearing loss
  • Bilateral incomplete partition type 1 spectrum with cystic cochleovestibular malformation
• Complete cleft palate with cleft lip
• Nissen fundoplication
• Muscular VSD
• Patent Ductus Arteriosus (PDA)
• Plagiocephaly
• Pulmonary Artery Hypertension
• Prematurity, completed 31 weeks gestation
• Constipation
• Hiatal Hernia
• Congenital Bronchomalacia
• GERD (Gastroesophageal Reflux Disease)
• Salivary secretion disturbance
• Hypotonia
• Asthma

You can follow along on Facebook, Instagram, and Twitter @mommaswearsalot or email me at mommaswearsalot@gmail.com