I’m The Less Than 1 Percent

Monday October 10, 2016

The day started out normal. We had just got home the night before from a weekend away.  Baby Squirrel’s first weekend away to be exact. The kids and I slept in a bit but I had gotten them up, changed, and brought downstairs. I started our morning routine but noticed I had a sharp cramping pain on my right side.  I thought it odd because I had just had my “period” a week and a half prior.  I say “period” because I have an IUD and typically have a day or 2 of light spotting, if that.

An intrauterine device (IUD) is a little, t-shaped piece of plastic inserted into the uterus to provide birth control.  An IUD is one of the most  effective forms of birth control with a 99.7 percent efficacy rate.

Quickly the pain became more severe, and even started to travel down my right leg. I text my girlfriend about it and she said it sounded exactly like a ruptured ovarian cyst. Nothing I did made the pain better or worse, it was a constant sharp pain, like the worst cramps ever with a dull achy pain down my leg, around my knee, and ending in my ankle. I had never experienced a cyst before so when the pain hadn’t let up for over 30 minutes I called an advice nurse at our hospital. The pain continued to spike while we talked and she made me an appointment to be seen by my general physician an hour and a half later, but told me if the pain got more severe or I had a fever to go straight to the ER.

Luckily my husband had the day off work for Columbus Day and, once his mom got to our house to watch the kids, he drove me to the hospital. Once there we took the stairs to the second floor, my husband acting as a crutch since my right ankle still really hurt with each step. During the drive my pain had actually nearly completed diminished.

The first thing my doctor asked was if I could be pregnant. No, obviously. I have an IUD in place, we were not trying, I have PCOS and had to use fertility treatment to conceive my twins.  She pushed around on my abdomen but the pain was gone.

I had already been thinking lately about having my IUD removed.  Not to have another child but because the idea of a foreign body inside me along with all the horror stories I had heard of IUDs rupturing women’s’ uteruses or traveling elsewhere in the body.  My current pain just pushed those stories to the front of my mind as an imminent possibility.  My doctor wanted to me to get blood work done before heading home.

That night my doctor emailed me,

“One of your blood test results is back and shows that your bHCG is high. This is the hormone that is elevated when you are pregnant. I have referred you to gynecology for an urgent appointment tomorrow.”

Shocked but still feeling that it was completely impossible, I Google searched for other causes of high levels of bHCG.  Never the best idea. Like most self-diagnoses, it was cancer. Certain cancers can cause elevated levels of bHCG.

Tuesday October 11, 2016

The nurse called me from the waiting area and took me to a room.  As OBGYN protocol, I had to give a urine sample which the nurse would test.  I explained to her my recent happenings and disbelief.  IUD. PCOS. Infertility. Yada yada.

She took a dropper of my pee and dropped it on a card-shaped pregnancy test.  Nearly instantly it turned positive. Big. Fat. Positive. I was pregnant. WTF mate?!

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Just like when I found out I was pregnant with the twins, I laughed.  What were the odds?! Less than 1% the doctor told me when she came in.  She performed an ultrasound and found my IUD was perfectly in place and I didn’t appear to have any visible cysts on my ovaries that could be the culprit of my pain.  The pregnancy was still too early to see with an ultrasound; but since I was having such bad pain there was a chance it was ectopic – meaning the fertilized egg had implanted in my fallopian tube.  Uterus = good. Fallopian tube = bad.  I had already decided I wanted her to remove my IUD, and now if I decided to proceed with this pregnancy it needed to come out anyway.  Just like going in, it hurt like a bitch coming out.

She asked me if it was a desired pregnancy. “Uhhh, that’s a complicated questions and answer,” I replied.

For so many reasons. We weren’t trying for more kids.  The twins had just turned two and were acting it.  Our hands were so full we weren’t even sure if we wanted any more kids. And as much as we loved our Baby Girl, we couldn’t manage another child with CHARGE Syndrome.  We would need additional genetic testing before continuing with a pregnancy.  Even having another healthy typical child would be like having twins again since Baby Girl still wasn’t walking or crawling.

I would be lying if I said I wasn’t a little excited.  Pregnancy is exciting.  It’s something to look forward to.  But at the same time I knew there was a good chance it wasn’t a viable pregnancy.  After my appointment I went outside and sat on a bench in the sun.  I called one of my best friends who lives on the east coast and told her the news.  We talked it through. I was still in disbelief as much as she was.  I’ve always wanted more than two kids, just not yet.  Then again when is it ever a good time for more kids?  Just in case I emailed my doctor to ask if it was safe to continue taking Zoloft.  She said it was the safest SSRI to take while pregnant.  It would be safer for my pregnancy overall to have my anxiety disorders properly managed.

Wednesday October 12, 2016

I had to go back for more blood work to see if my hormone levels were going up or down and by how much.  My doctor emailed me when she received my lab result,

“Your level just came back, and is now down to 339 for 414. The fact that it is going down shows us that this is not a normal pregnancy as we suspected. The fact that it is going down instead of up is good in terms of risk for ectopic, but we still need to follow this to make sure they continue to go down to zero. Please repeat your lab again on Friday, and come in right away if you start to have strong abdominal pain.”

I knew from my miscarriage nearly 3 years prior that a drop in hormone levels meant the pregnancy would not continue. I was mostly relieved.  I knew we didn’t truly want the pregnancy to begin with.  This way we wouldn’t have to make the ultimate decision, it was made for us.  So I would continue to get my blood drawn every two days till my hormone levels returned to zero.

Friday October 14, 2016

The pain had returned with a vengeance.  When my husband came home from work that afternoon I had him take me to the ER. We checked in at 5pm and wouldn’t go home till 7 hours later and a shot in each butt cheek.

They finally got me into a bed and ordered an ultrasound.  An ectopic pregnancy hadn’t been completely ruled out and the pain could mean my fallopian tube had ruptured, which would require surgery.  An ultrasound would help the doctor determine if I did in fact need emergency surgery or if I was a candidate for medication that would dissolve the pregnancy.  I brought up the possibility that my hormone levels were alternatively being caused by cancerous cells.  The doctor reassured me that the medication worked by attacking any rapidly multiplying cells, which includes embryos and tumors.  This is also why I would have to continue having my blood tested every 2 days till my hormone levels returned to zero to assure that if it was a tumor it was completely eradicated.

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As any one who has been to the emergency department knows, there is no such thing as a quick ER visit.  I finally get wheeled over to the ultrasound room.  It was the same room and technician I’d had during my first pregnancy which ended in miscarriage.  I remember being frightened that time, and alone – my husband was not allowed to go with me that time.  This time, however, he wasn’t leaving my side.  I squeezed his hand tightly during each flashback.

The absolute WORST part of an ultrasound is when the technician isn’t talking to you.  We learned with our very first pregnancy, and a majority of ultrasounds since, that silence usually means they see something abnormal. Ultrasounds are probably exciting and joyous for most woman. But for me, they are traumatic.  Not only are they invasive (early in a pregnancy ultrasounds are done vaginally with a “wand”, they are given on the belly later on when the fetus is larger), but they are looking at something that you’ve either intentionally – or not – attached a piece of your heart and soul.  It kills a piece of you every time they find something that isn’t “perfect.”

This tech barely said a word to us.  I could sense my husband was scared, so was I. Every terrible thought was going through my head.  I became fixated on the thought of if it was cancer and I died my children wouldn’t even remember me.  That was the scariest thing I could imagine at the time.  After many silent tears, and what felt like years, I was wheeled back to my cubby in the emergency department for more waiting.

Finally the doctor came and told us it appeared to in fact be an ectopic pregnancy and that my tube had not yet ruptured, meaning I would not need surgery. Woohoo!  However I would need to roll over onto all fours for a shot in each cheeks. My husband and I couldn’t resist, nearly in unison we quoted, “that’s how this whole mess got started.”

They finally sent me home around 1AM. I would have to continue having my blood tested every week till my hormone level returned to zero. Which would take over a month.  After my second to last blood draw my doctor called me laughing to tell me my levels were 0.5! As I’m sure you know, 0.5 isn’t zero.

And yes, we bought lottery tickets.
We have yet to be in THAT 1%.

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My Battle To Baby(s)

This post is dedicated to the hopeful mommy-to-bes out there.  No matter how long your path takes, whether it takes 1 month or 60, till you have your baby in your arms it feels like forever.

Thank you so much for the outpour of love and support that came from my first blog post! I never imagined the positive response I’ve received.  xo

Rather than pick up the linear timeline where I left off, I want to go back a bit. I come from what I always considered a long line of Fertile Myrtles. My maternal grandmother had 7 children, my mother had 5, and my oldest sister, who apparently can’t look at her husband without getting pregnant, has 8 children.  So I was certain that the day I got off birth control I’d get knocked-up. Because of that fear I was always very responsible; I had never even had a legitimate pregnancy scare before.

In December 2013, three months after my husband and I got married, we decided we were ready to start our family. I stopped my birth control and bought a pack of pregnancy tests. Nothing the first month. Disappointed but I knew it was completely normal and to be expected. The 2nd month, nothing. Mildly irritated but still normal. My doctor has advised me at my pre-conception check-up to allow my menstrual cycle (I hate that term) to normalize for two months before trying to conceive. Two months is a long ass time to wait when you want to get pregnant; when you are ready to have a baby you want that baby NOW. In the months that followed I went through multiple 20 packs of ovulation test kits, charted my cervical mucus, and even purchased a special oral basal fertility thermometer to record my waking temperature every morning. Nothing.

When you’re trying to get pregnant it feels like everyone around you is getting pregnant on the first shot. Those people suck. Just kidding! They are very fortunate and I am jealous. But trying to get pregnant can make you do thing that you know aren’t logical…

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Not my brightest idea

Months came and went, 11 to be exact. I was so pissed off at my body and feeling like a complete biological failure. I didn’t want to think about it anymore. I didn’t want to talk about it anymore. And then it happened. A faint second line on the pregnancy test. I had thought for nearly a year of fun ways to reveal our pregnancy to my husband and when it finally happened I opted for Facetiming him and screaming like a crazy person.

We were on cloud 9, I was finally pregnant! At 5 weeks I had a blood test and an ultrasound to confirm the pregnancy. We got to see the little blob that was our baby! It was the most special little blob we’d ever seen. We started talking about names and discussing our bright new future. We planned to wait till the 2nd trimester to announce the pregnancy to our families but we couldn’t resist telling a few of our closest friends.

The excitement was short-lived. The blood test confirmed I was pregnant but my hormone levels were much lower than they should have been. Then I started having very light spotting.  I was so scared I was going to lose this baby after waiting nearly a year for this moment. I couldn’t hold my tears back when I would speak on the phone to advise nurses.  They asked me to come back in at about 7.5 weeks to check on our baby. The first thing I saw was a flicker. My worries vanished. Our baby had a heartbeat. My own heart flutters just thinking about it now more than two years later. Next we heard the heartbeat. It was music to our ears. I think my husband teared up a bit even. He had been scared too but was staying so strong for me.

My doctor called it a “threatened miscarriage” and said she didn’t expect the pregnancy to last. We didn’t listen. We had seen and heard the heartbeat, our baby was alive and the excitement returned.

The following saturday we were getting ready for my sister’s black tie 40th birthday party when the cramps and bleeding started. I called an advise nurse but I couldn’t be seen till Monday. My heart was broken but we pulled ourselves together, slapped on smiles, and went to  the party.  We tried to remain positive and I tried not to think about what was happening inside my body.

Two days later I went in for an ultrasound. The flicker was gone.  I lay there on the table, tears silently rolling down my face, waiting for a 2nd OB to come and confirm the miscarriage.  I faced the wall, I didn’t want to see the motionless ultrasound image again.  We made it 8 weeks and it was over.  I was given the option of going home and waiting to miscarriage naturally or I could have a Dilation & Curettage procedure (D&C), basically an abortion procedure. I opted for a D&C, the baby was dead, I wanted to get it out and over with.

We rushed out of the clinic, I didn’t want to see any of the pregnant woman in the waiting room.  Once at home my husband lead me up to our bedroom to bed but I didn’t make it. I collapsed on the stairs and the emotion of our loss came flooding out. I honestly can’t recall much of the night after that.

Later that week I went in for my scheduled D&C.  I had to take a strong antibiotic on an empty stomach an hour before the procedure so by the time they took me back I was extremely nauseous. They led me to a bed with a bag for my belongings and a gown to change into. My husband wasn’t allowed to come back with me, I would see him again in recovery.  Once I was ready my bed was wheeled down the hall to wait and get an IV line started. I asked for a barf bag because I honestly felt like I was going to puke. The nurse tending to me was very friendly and chatty. She complimented me on my ring and we talked a little about my wedding.  Then she said it, “Why are you having this procedure today, you’re just not ready to be a mom?”  I was stunned. I would guess the abortion rate among married woman is much lower than the general population but maybe I’m wrong.  As I mentioned before, I had never been pregnant before.  I am Pro-Choice but I am thankful I have never had to make that choice.  I didn’t know how to respond. “The baby died,” I finally stammered out. My brain couldn’t formulate “miscarriage” at that moment. “Oh, I’m sorry. You know my sister had one of those before,” the nurse replied.  I just wanted her to leave.  When she finally did I laid there alone, silently crying, trying not to barf.

When the time came, they wheeled me down the hall into an operating room.  I was thankful it was all women performing and attending my procedure.  I remember the room was cold so they covered me with a warm blanket.  They put my legs in stirrups and tied them there.  They started pushing my sedative which instantly took effect.  I was awake for the entire procedure but I was mentally and physically numb.  I recall a nurse with the softest warmest hands in the world held my hand the entire time.  To this day I am still so thankful to her.

When it was over I imagined where the mass of cells that had made up our baby had gone. In the trash…biohazard…incinerator maybe…

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My dogs keeping an eye on me as I recovered at home

My husband really wanted me to write about our miscarriage, but he wanted me to make it a positive thing.  I’m struggling to find that positive twist.  Miscarriages suck for lack of a better word, and are physically, emotionally, and mentally traumatic. I think the worst long term effect is I no longer equate pregnancy with having a baby.  A friend recently shared with me she had had a miscarriage and after she “felt sad/embarrassed about it and felt that I needed to keep it a secret.” With 1 in 4 woman experiencing at least one miscarriage in her life, keeping it a secret makes us all feel more alone.  Don’t get me wrong, I don’t expect woman to want to share something so traumatic and disappointing. That’s why I can’t find the positive twist.  I guess I am thankful I lost our baby “early” rather than later…

After I recovered from my D&C we were referred for infertility treatment.  Our specialist said he believed I had Polycystic Ovarian Syndrome (PCOS) which was keeping me from ovulating regularly.  And that alllllllll the ovulation kits I’d gone through were a waste because they don’t work for women with PCOS.  I kept a journal during the process. I wrote about how ill the various ovulation medications made me feel; the hormonal swings that made me feel like I was out of my mind.  I was obsessive. Getting pregnant was all I thought about all day long. I was even getting annoyed of thinking about it all the time.   All the fear I had accumulated during my previous pregnancy leading up to the miscarriage still followed me, more so maybe even.  For over two months this continued, I never felt well. I had what I described as a feeling of “general shittiness.”  I wrote in my journal:

“Sick and tired of being sick and tired. I can’t remember the last time I felt good. I’m so sick and tired of hearing myself think and talk about TTC  (Trying To Conceive) and infertility. But I’m also really scared of being pregnant again. I’m scared of losing it again or of all the other bad things that can happen. I feel like a crazy person. I want it so bad but I don’t want it/scared of it all at the same time. I want to be pregnant but waiting and fear will just begin again. I wish so bad I could be as ignorant and optimistic as women that get pregnant right away and everything is so easy for them. I’m so bitter and jealous.

I try to remind myself that I come from fertile women and I just need a little extra help to unlock my potential. I wish I could just turn off all the negative thoughts.”

I had to have a procedure called a hysterosalpingogram (HSG), for a HSG a doctor fills your lady parts with dye and then a radiologist takes images of how that dye travels through said lady parts. “It was amazing to see what my organs look like. The fallopian tubes literally look like a strand of hair!” Radiologist said everything looked fine except for what looked like fibroids or polyps in my uterus.  I asked if they could be scar tissue from the D&C, she said yes. “I started to tear up. She said its really easy to fix and remove. I cried all the way back to work. Its just one more set back. One more hurdle. I’m so over it.”

My infertility specialist wanted me to scrap the month and have the procedure to remove the scar tissue. I was so frustrated. This cycle I had already been on heavy ovulation medications for two weeks, I didn’t want this month to have been in vain. I insisted we continue and see this month through and if I didn’t get pregnant than I would have the procedure. I did not want another fucking procedure. I dreaded it. The thought of it gave me flashbacks to the D&C and being tried to the stirrups. “I want it to happen this cycle so I don’t have to have the procedure. This ordeal makes me feel weak because I want to give up so quickly.”

We continued with the cycle and I was given an ultrasound so the doctor could see if I was ready to ovulate. I wasn’t. It was disappointing because I would have to double my medication for 5 days and come back again. I asked my husband if it was hard for him to see an ultrasound image again since our miscarriage – he didn’t like it. Five days later we returned and this time I had 3 eggs that were ready! I was told I had a 40% of getting pregnant this month and a 6% chance of getting multiple. She asked, “you have a chance of having triplets, do you want to continue?” The thought of triplets was horrifying to me but we said yes without skipping a beat.

We were given medication that James would have to inject into my stomach at home which would cause me to ovulate within 48 hours.  I hate needles and shots but it wasn’t bad. So for the next few days we started sending in applications for a stork…

I was told to wait 10-14 days before taking a pregnancy test since the ovulation injection could cause a false-positive. I waited 8. Those are the 2 longest minutes of your life! But there it was, a super faint 2nd line! I knew it was too early so I kept it to myself and tried to not get too excited. Two days later I took another test and the 2nd line was slightly darker. I decided I would tell my husband that night. I got one pink and one blue bandana and I made signs for our two dogs to wear around their necks, “I’m going to be a big brother!” and “I’m going to be a big brother (again!)” I told my husband to call the dogs. He thought the bandanas were cute but in true man style he was completely oblivious to the signs they had around their necks. He just wasn’t getting it so I practically shouted “I’m pregnant!”

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A blood test confirmed the pregnancy and this time my hormone levels were elevated appropriately. At 5 weeks along we went back in for an ultrasound to take a look. Although I had had so much fear of being pregnant again, I was feeling really positive this time.  So when the ultrasound tech didn’t say anything right away my heart sank. Not again! I couldn’t bring myself to even look at the screen. Then she spoke, “Do you see those two sacks?” My eyes pop open!

“Twins?!”

“Yep!”

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Twins!

We had never wanted twins but we were so excited that I was pregnant again and that everything looked good so far.  The first day we couldn’t stop laughing about it. The next day I cried all day at my desk. I was terrified! I come from a large family, I’ve seen firsthand how hard one newborn can be at the beginning. I didn’t know how we would manage. Thankfully my bestfriend knew just what to say: FullSizeRender (5)

Thank you for sticking with me! I plan to post at least once a week. Stay tuned for NICU, Postpartum Depression, and Other Things That Suck. All with lots of never before shared photos of A&A during our 133 days in the NICU.

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